Levi's Heart: SUCCESSFUL REPAIR!!!

Friday, June 24, 2011

SUCCESSFUL REPAIR!!!

Dr. Hanley successfully repaired Levi's aortic valve and ascending aorta!!! On a scale of 1-10, Levi's leakage was a 9 going into surgery and now it's a 1. On a scale of 1-10 Levi's stenosis (narrowing) was a 2 and is now a 2.5, which the surgeon isn't concerned about. He was very happy with these results. More details to come. We're going to see Levi now.

2 comments:

TiffJune 24, 2011 at 3:06 PM
We are so thankful to God for his incredible kindness. We pray Levi comes off of the anesthetics with little incident and has a gentle recovery from this incredible surgery. We praise God with you!
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EdJune 24, 2011 at 3:38 PM
Dear Erika and James,
What a wonderful answer to prayer that the surgery went well and you are now able to see Levi, even as we speak! We pray your room at RMH is just what you hoped it would be!
Our love to all of you....and to the doctors,nurses,and hospital staff! Jeanne and Ed Blackwell
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Levi's Story

After a normal pregnancy, on June 18, 2010 our third son, Levi, was born. He was beautiful, sweet, and as far as we knew, healthy. Doctors and nurses who routinely monitored his vitals in the hospital heard a heart murmur but thought it was normal and would go away within 24 hours.

Everything changed the evening of June 19. Our regular pediatrician was on call at the hospital and after checking Levi's murmur, sent him to the NICU for an echocardiogram to see exactly what was causing the murmur. The echo showed that Levi had critical aortic stenosis, a serious congenital heart defect (CHD). Infants born with critical aortic stenosis have an aortic valve opening so small it is impossible for the heart to pump enough blood to meet the baby's needs.

Levi was quickly air lifted to OHSU in Portland, OR for an emergency balloon dilation catheterization of his valve. The procedure worked to open his valve a moderate amount, but it also caused a moderate amount of leakage of blood back into his heart. Tests also revealed that Levi has a malformed and thickened bicuspid aortic valve instead of a three leaflet aortic valve. Levi spent six days in the NICU before coming home.

On June 24, 2011, at one year old, Levi had his first open heart surgery at Lucile Packard Children's Hospital at Stanford in CA. His bicuspid aortic valve was successfully repaired and his dilated aneurysmal ascending aorta was reduced. The surgeon also did a resection of fibromuscular subaortic membrane and supravalvular aortic valve stenosis.

Much sooner than expected, on March 21, 2014, Levi went in for his second open heart surgery to resect the severe subaortic stenosis which had aggressively developed in less than a year.

We hope that these repairs will give him many more years before another surgery is needed. The next surgery will most likely be a valve replacement. He is closely monitored by a cardiologist and currently has moderate aortic stenosis.

Other than his heart defect, Levi is THRIVING. He is strong, resilient and very active. He's doing great in school and loves biking, soccer, reading, and drawing. We love our little miracle dearly. He has already taught us so much about living in such a short amount of time.

To read more about Levi's story from the beginning, start here.